End of day summaries

Monday, March 20, 2017

Latest Activities

Our Call Manager Extradonaire, Peg Griffith, sent out an email, and I am blatantly plagiarizing her good work ... 
 
I mentioned there was some beta testing going on regarding new processes….we are now ready to roll them out.   Below is a summary of the four call-related processes we are currently doing:

1. Facility Calls (previously called Daily Calls):
These are first calls to find out if the facility is a viable option for us to continue to call.   We aren’t doing any of these right now, but they might pop of here and there when we get new facility lists.

2. Research *** NEW ***:
We have had people behind the scenes searching on-line websites, googling and being detectives trying to find contact information for hospitals so callers that are doing deep dive calls (see #3) can more easily bypass the receptionist and avoid other bureaucratic landmines.   

3. Deep Dive ***NEW***
Once the researchers gather the information, a data sheet is sent to the deep dive callers and they are to contact the facility using the contact information provided by the researchers.   These calls are similar to facility calls, but they are more in-depth and focus more on the administrative, social services, case management, admissions, etc. departments versus the emergency rooms.   Once the deep divers make the call they are asked to evaluate whether this facility should be adopted.

4. Adopt A Hospital (AAH):
These are facilities that are assigned to one person to establish a relationship and enter data when calls are made.  These calls are on your own schedule based on the relationship you have with your facility.  

As always, if you would like to do any of these tasks, email NancyIsMissing@gmail.com and let us know which one(s).

In Addition

We are continuing to try the "top down" approach.  Detective Rosenberger from the Manhattan Beach Police Department accompanied me to downtown LA last week to see if an in-person visit would get the people at the Medi-Cal Investigations and Fraud Division to help us by supplying another list of palces that have applied for Medi-Cal coverage for a person without a valid SSN.  They promised to provide this info by tomorrow evening.

I also spoke to the Probate Division head of the LA County Public Guardian.  This is the area where any applications for conservatorship will go.  He assured me that he is looking for applications that match Nancy's profile.

Also, my sister has been busy calling the Public Guardians and Adult Protective Service agencies at counties in California, letting them know about Nancy and asking them to keep a lookout.

As always, thanks for all your hard work and dedication to finding Nancy.

Spefics on Choclate Screening

The date and time has finally been set for the Chocolate Screening:

Laemmle Noho 7
Saturday April 22 at 4:30pm.  Feel free to spread the word! I believe that tickets are $12. 

Tuesday, March 7, 2017

Movie "Chocolate" Film Festival Info

Chocolate will be shown at the First Glance Film Festival, which runs April 20 - 23 at Laemmle Noho 7 Theatre.  The schedule is not yet set, but you check it out here:

Link to Film Festival Facebook Page

Sunday, March 5, 2017

Remarkable Short Movie: Chocolate

I was invited, along with Nancy's parents and Nancy Ward, to a private screening of the short movie "Chocolate". 

The movie is about a woman who has early onset Alzheimer's and wanders from home, ending up in the homeless community in Los Angeles.  (Rather remarkable, really).

The movie features truly amazing performances, including by Piercey Dalton (playing "Eve", the subject of the film), Joao Bounassar, Amy Argyle and Talia Bacha.  (you don't have to take my word for that, the movie was nominated in four categories for the London IFF, and Amy Argyle won for best supporting actress).

Thiago Dadalt wrote and directed this movie - and it is scary how accurate it is. 

There will be a showing for the public at a North Hollywood film festival, I believe in April.   Please check it out.

Facebook Page for Chocolate

Wednesday, March 1, 2017

Daily Breeze article on the LA County Board of Supervisors vote to help find critical missing persons...

Nice article in the Daily Breeze describing the vote by the LA County Board of Supervisors to set up a task force to better help families whose loved ones with dementia, Alzheimer’s disease or autism wander off and go missing.

Click here for article: Daily Breeze Article: LA Country Board of Supervisors Vote to Find Critical Missing Personss

Tuesday, February 28, 2017

LA County Board of Supervisors to study tracking devices

I went to the LA County Board of Supervisors meeting today at the invitation of Janice Hahn.  She co-sponsored the following motion:

Recommendation as submitted by Supervisors Hahn and Barger: Establish the Bringing Our Loved Ones Home Task Force, led by the Director of Workforce Development, Aging and Community Services, in coordination with the Chief Executive Officer, the Sheriff, the Director of Public Social Services, as well as the Office of Public Guardian, the Commission on Disabilities, the Los Angeles County Commission on Local Governmental Services, the Commission on Aging, the Countywide Criminal Justice Services Coordination Committee, and the Alzheimer’s Greater Los Angeles, to explore the feasibility of establishing a voluntary Countywide program that can keep track of adults and children and expedite the recovery of  those individuals who wander away from their families and caregivers, and explore the best available devices to be implemented, provide guidance and a timeline for comprehensive training, estimate the cost of such a program, and report back to the Board within 60 days with their findings. (17-1008)

I was invited to speak to this topic and said this:

My name is Kirk Moody and I am here to endorse Supervisor Hahn's motion to study the use of tracking devices for people who may wander from their caregivers, and the associated training necessary for emergency personnel.

Unfortunately, I have personal experience with the need for such devices.  My wife, Nancy Paulikas, suffers from severe early-onset Alzheimer's disease.  Nancy wandered from a family outing last October 15th and we have yet to find any trace of her. Despite enormous efforts by literally hundreds of volunteers and the police, as well as broad media coverage, we have ye to find single credible clue as to Nancy's whereabouts.

At the time she wandered, Nancy was wearing a Medi-Alert bracelet - the sister bracelet to this one that I am wearing now. These are one of the most common current tools to help find wanderers.  Unfortunately, they contain no active tracking mechanism.  They simply have instructions for contacting the caregiver if someone should see the person and read the bracelet.  It is not uncommon for the patient to remove the bracelets.

My frustration in finding my wife is a situation that promises to repeat with increasing frequency as the overall population ages and Alzheimer's disease, other forms of dementia, and conditions such as autism become more prevalent.

Please consider Supervisor Hahn's motion as a critical step in helping solve this problem.
The motion passed and they are going to get a report back in 60 days.

Saturday, February 18, 2017

What we are up to right now

We have several activities going on right now, and I'll try to summarize them here.

  1. Adopt a Hospital - we have a list of the largest hospitals in the area and the ones closest to LACMA.  Instead of calling them often (with emphasis on the ER), we are asking "adopters" to work with a single hospital from that list, and hopefully establish a connection with someone who has the breadth to be a point of contact going forward.  This allows us to just call the hospital once every other week or so to make sure they are aware that Nancy is still missing and that we are still looking for her.
  2. Daily calls.  At the moment, we do not have a list of additional places to call.  This will probably change in the next week or so based on some large database work going on.
  3. Facility visits.  Despite all of the calling we have done, it is somewhat disappointing to actually visit facilities that we have called in the past and they claim they have not seen the flyer or heard about Nancy.  So, we have people visiting care facilities to drop off flyers and get them to post them where the nurses congregate (nurses all work at more than one place). 
  4. Working from the "top down".  We are still working with the Medi-Cal office to discover instances of facilities applying for Medi-Cal reimbursement for people that fit Nancy's demographic but do not have a valid SSN.  In addition, we are looking into how we can get someone to review all of the forms that are filled out when a hospital holds someone for evaluation (these are called 5150s ... the Public Guardians office tells us they have reviewed all of the 5150s they have received with no matches, but there are other batches of 5150s, and we are trying to get someone to look at those).
As always, if you would like to participate in any of these activities, please send an email to NancyIsMissing@Gmail.com and let us know your interest and availability.

Wednesday, February 15, 2017

Very Nice Letter From Sarah Dalhover of Vista Pacifica Center

As many of you have experienced when calling or visiting a facility in search of Nancy, there are people who just don't seem to want to be bothered.  You also get kind people who are willing and able to help.  And then you get superstars, like Sarah Dalhover from the Vista Pacifica Center in Riverside.

Ms. Dalhover sent me the following letter which just made my day.

Monday, February 13, 2017

Nice Article in MBDigs

Jeanne Fratello has a nice write up in DIGMB ...
http://www.digmb.com/2017/02/10/134967/search-continues-for-missing-alzheimers-patient

Tuesday, January 31, 2017

Thanks Again To Supervisor Janice Hahn's Office

I received a call from Mark Baucum at Janice Hahn's office.  They  have been very active in spreading the word about Nancy throughout the LA County Government offices.  They have distributed it to hospitals, Skilled Nursing Facilities, nearby county offices, and fire and police departments.

They also arranged for LA Channel 36 to cover the story and I was interviewed last week.  I don't yet have the information on when that will air, but will post it as soon as I find out.

Tuesday, January 24, 2017

Presence at Women's March in LA - thanks Chris Miller!

Chris Miller went to the Women's March in LA last Saturday.  He took flyers and a large poster with him and got several connections.  Notably, Joe Bray-Ali - a candidate for LA City Council took a picture and said he'd put it on his FaceBook page, as did Kevin De Leon - the president of the CA State Senate.  Also, the organizers of the Women's March took a picture and also said they would post it.  Thanks Chris!

Friday, January 20, 2017

Link to concise video of Nancy's story from the episode of The Doctors...

One of the team created an edited version of Nancy's story based on the episode of The Doctors that highlighted her plight.  A link to this version is below.

LINK to edited version of Nancy's story from The Doctors